Guillain-Barre' Syndrome: My Worst Nightmare Paperback – November 10, 2004

Byron Comp did a very good thing sharing his experience dealing with Gillian Barre. This book helped me to better understand what a good friend and a wonderful person is going through. He found out he has GBS just this year in June. He has been in the hospital for about 10 days and 70 days so far in the rehab hospital. He is still paralyzed but gaining a little ground each week. The last parts of the book are great it is good to understand the recovery part of this illness and that 95% of the people do recover. This book is a good read for anyone and it does give you a dose of appreciate what we have and we are all truly blessed. Someone out there is always having a worse day than we are having on our worst day... Nice job Byron and thanks.

Book was in great shape but it is more of the writer's daily diary. Not as helpful as we thought it would be. Not worth the money.

I had to go through this as well, and what I would have given to just be paralyzed.In a way I was, but I was paralyzed from pain. The main effect it had on me was the wrong signals being sent to my brain. The slightest breeze on my skin would make it feel like I was burning alive. The lightest touch of a sheet was like razors. In the end I fully recovered, with much love and support from my family.I feel pity for anyone else who had to suffer this syndrome also, but it could have been much worse, and for many it was/is.

As a survivor of Guillain Barre Syndrome, I personally did not care for this book. I realize that everyone is different, and perhaps I should pen my own account. My case was much worse than the author's, which may account for my disgruntle attitude. Sorry.

THIS BOOK WAS VERY INFORMATIVE ! IF YOU HAVE HAD ANY FORM OF GBS [GUILLAIN BARRE' SYNDROME] IT IS A MUST OR IF A FAMILY MEMBER HAS BEEN DIAGNOISED WITH GBS!

This book really makes you think twice about the care you give to other people, and what kind of care you would recieve if you were in the same position. I couldn't put the book down. I finished it in one day. I cried through most of it. Even I didn't know what all he went through on a daily basis. I am very proud of the strides my DAD has made.

Anyone buying this book in the UK will need to be mindful of slight differences in treatment regimes possibly offered here. The comments on nursing and medical care do chime with some of what I experienced even though the author had his experience a few years back now. Bearing this in mind it could be essential reading for anyone caring for a patient with GBS.I found I could not read this book initially as it was not helpful to revisit another's experience, as I was too busy dealing with my own situation and did not want that clouded nor did I wish to "rubberband" back to where I had been. I was however fortunate in not needing to be ventilated and also as a result was able to be discharged home sooner than the gentleman in the book.